A study by the Center for Information & Study on Clinical Research Participation shows significant improvement in public perceptions of clinical trial safety, trust in the motives of research professionals, and appreciation for trial volunteers. The study also offers insights into participant behaviors including those who drop out of trials prematurely.
The online study, conducted between January and March 2013 among a global community of health information seekers and research participants, assessed changes in public perceptions and attitudes about clinical research and gathered insights into study participation experiences. Nearly 6,000 surveys were completed.
Key findings include:
“This critical study informs an enterprise now focusing on patient-centered research programs,” said Kenneth Getz, lead study investigator and director of sponsored research programs at Tufts’ Center for the Study of Drug Development (CSDD). “Despite an industry-wide desire to better understand and engage patients, there hasn’t been a large scale assessment of their attitudes and perceptions conducted since 2005,” said Getz.